There are two different ways I am disabled. There is what my body, my individual biology, does that no one can change. I will always have chronic fatigue and I will always have pain. My medical team and I do the best we can to ameliorate both, but they are inevitable.
Then, there are the ways in which I am disabled by society: lack of accessibility, lack of support, lack of knowledge and rampant ableism, to name a few. These are far from inevitable.
The cost-of-living crisis is…
You know what I would really enjoy, readers? I would enjoy being able to write a column that doesn’t involve having to have a rant about Tory policy in one way, shape, or form. Alas, today is not the day for that.
Since PN last went to press, ambulance workers and nurses have been on strike, with further dates coming. Junior doctors are voting on whether to strike. Postal, railway and bus workers have all withdrawn their labour, again with further dates coming. The…
There are a lot of things I could say, write, and otherwise communicate, about Post-Traumatic Stress Disorder (PTSD).
But let me start with the most obvious, or at least the most obvious to me, an almost life-long sufferer.
Having PTSD fucking sucks.
There. I said it. I think a lot of my fellow sufferers would agree. It sucks all day long and twice on Sundays. It sucks long, hard, wide and sideways. It sucks upside down and inside out. It even sucks at night.
It…
As I write this column, I am watching the state funeral of queen Elizabeth II, and my mind is boggling. The first thought is: ‘Well, this is the one thing we are “world-leading” at these days – pomp and circumstance and pageantry – at the expense of the taxpayer.’ I mean, yikes.
We are in the middle of a cost of living crisis. Thousands, if not millions, of people are genuinely afraid of either starving or freezing this winter, or both. Electricity, food, fuel – the price of…
In mid-May, after a three-year wait (made a year longer by COVID-19) I was diagnosed with autism.
What a relief! After 36 years of feeling like ‘an odd duck’, answers!
A friend of mine once wrote in his blog: ‘self-reflection doesn’t have to be the bastard child of tragedy’. It’s a good way to explain why I started the journey of an ‘official’ autism diagnosis; it is part of my own self-reflection. It is for me.
Medical diagnosis is a privilege only afforded to me…
On 11 May, thousands of veterans of the First Gulf War of 1991, those affected with Gulf War Syndrome, were vindicated.
After over 30 years of official denial and gaslighting, the cause of the veterans’ suffering has finally been identified: sarin gas.
Odourless, tasteless and wildly fatal (a few drops on bare skin can kill), sarin is one of the most toxic chemical weapons known to humankind. Unknown amounts of sarin (and other chemical weapons) were released into Iraqi air…
I am a sixth-generation Londoner, on my father’s side. It is home, in every sense of the word. Yet London can be a lonely place; try and strike up a conversation on the bus or in most cafes and chances are, you’ll be rewarded with a funny look or a raised eyebrow
(I personally favour the latter, for the record).
There are few places where this rule doesn’t hold true, and they are beyond precious.
Since last December, London has had another one of these welcoming, strike…
I’m getting to the point where my thoughts on Boris Johnson’s government are usually expressed in a series of unintelligible, exasperated groans. But for you, PN readers, I will attempt to put my rage, my contempt and my disgust into words.
On 20 May 2020, as the country was in the depths of the first kockdown, Alexander Boris de Pfeffel Johnson and his cohort, including his wife and his newborn son, were ‘making the most of the lovely weather’ with cheese and wine in the…
Dear Fibromyalgia,
You woke me up three times last night. When sleep finally came, my careful, conscious positioning of my body went out the window. And so, you woke me with pain. When I finally woke at an appropriate hour, you greeted me instantly; my constant, demanding companion. Over the night, carefully-maintained joints and muscles have stiffened, the previous day’s physiotherapy undone.
I feel like I haven’t slept – non-restorative sleep is typical with fibromyalgia.…
I don’t think I am in alone in watching in absolute horror as the rest of the world has abandoned Afghanistan to the Taliban. Our government, with many others, has betrayed their democracy, and abandoned them to a theocratic regime with a reputation for brutality, especially towards women and girls.
For the past 20 years our Afghan sisters have made great strides towards equality. They formed a national cricket team, competed in the Olympics and won awards for their scientific work.…
As I write this, BBC News is reporting the fatal stabbings of a 15-year-old and a 16-year-old in different parts of South London, within hours of each other. Another 15-year-old child has been arrested for one of the murders.
So far, 21 teenagers have been murdered in London in 2021.
As we ease out of lockdown, our old social problems are resurfacing with a vengeance.
Personally, I think the blame falls…
We need to talk about death. Even as I write this sentence, I can almost hear PN readers groan ‘what, more?! Haven’t we talked about death enough in the past year?!’ But, yes, we must talk about death. We must talk about death on both micro and macro scales.
On the micro scale, the past year has painfully reminded many people, including myself, that the only two things we are assured of in life are death and taxes. I have come to the conclusion that we have absolutely nothing…
It’s not often a work of televised fiction comes along that I would call important.
Watching Russell T Davis’ new five-part miniseries, It’s A Sin, for me, ‘important’ was the only word to describe it.
The series focuses on the lives of a group of young, gay men and their friends, in London during the height of the AIDS crisis in Britain. It’s A Sin is, unsurprisingly given the topic, tough viewing; I am not ashamed to admit I wept.
I was born in…
On 6 January, something happened in Washington DC that has not happened since the US-UK War of 1812. The Capitol building, that instantly-recognisable symbol of US democracy, was stormed by Donald Trump supporters.
I watched, agog, as many of the same people who called peaceful BLM protesters ‘thugs’ donned assault rifles, gas masks and body armour, and attempted to reverse the results of a legitimate federal election.
Rhetoric has consequences.
Just like the ‘Stab in…
I’m going to say it – I love vaccinations. I was among the first generation of my maternal bloodline that did not have someone contract tuberculosis. The addition of the BCG vaccination to the British vaccination schedule in 1950, and the herd immunity it resulted in, is most likely the reason my peers and I were spared.
My grandmother, ‘Mam’ to me, suffered polio as a child. I grew up hearing stories of how her childhood was spent in calliper-style leg braces, her life a whirlwind of…
